Resolução da Assembleia da República n.º 165/2018
Data de publicação | 10 Julho 2018 |
Seção | Serie I |
Órgão | Assembleia da República |
Resolução da Assembleia da República n.º 165/2018
Consagra o dia 15 de junho como Dia Nacional da doença de Huntington e recomenda ao Governo que aprove medidas, no âmbito do Serviço Nacional de Saúde, para reduzir o impacto desta doença e apoiar os seus portadores.
A Assembleia da República resolve, nos termos do n.º 5 do artigo 166.º da Constituição, consagrar o dia 15 de junho como Dia Nacional da doença de Huntington, e recomendar ao Governo que:
1 - Assegure, através do Serviço Nacional de Saúde (SNS) ou, se necessário, com recurso a centros privados autorizados para técnicas de reprodução medicamente assistida, o pleno acesso às técnicas de procriação medicamente assistida (PMA), designadamente:
a) Aumentando o número de tentativas de acesso ao Diagnóstico Genético Pré-Implantação (DGPI), por parte das pessoas portadoras da doença de Huntington, de modo a evitar a transmissão da doença para descendentes;
b) Criando grupos distintos no acesso às técnicas de PMA, em particular nos casos indicados para DGPI, que atendam a fatores diversos como, por exemplo, a existência ou não de tratamentos que impeçam a progressão da doença cuja transmissão se pretende evitar.
2 - Promova a criação de unidades de apoio dirigidas especificamente a doentes com Huntington, dotadas de recursos humanos adequados e devidamente qualificados para assegurar, nomeadamente, os seguintes serviços:
a) Cuidados médicos e de enfermagem especializados;
b) Prestação de apoio psicossocial, através de psicólogo e assistente social;
c) Prestação de apoios na área da reabilitação, designadamente de fisioterapia, terapia da fala e terapia ocupacional, bem como para atividades de movimento;
d) Prestação de outros apoios que satisfaçam as necessidades básicas...
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