Resolução da Assembleia da República n.º 203/2018
| Data de publicação | 23 Julho 2018 |
| Seção | Serie I |
| Órgão | Assembleia da República |
Resolução da Assembleia da República n.º 203/2018
Recomenda ao Governo a adoção de medidas na área das doenças raras e da deficiência
A Assembleia da República resolve, nos termos do n.º 5 do artigo 166.º da Constituição, recomendar ao Governo que:
1 - Publique o plano anual para 2018, no âmbito da Estratégia Integrada para as Doenças Raras 2015-2020.
2 - Conclua a criação do registo nacional de doenças raras.
3 - Aposte na investigação científica especializada para um melhor conhecimento das doenças raras e de novas formas de tratamento.
4 - Promova a criação de formação específica sobre doenças raras destinada aos profissionais de saúde.
5 - Crie condições que possibilitem o acompanhamento psicológico regular dos portadores de doenças raras e de pessoas com deficiência, bem como dos membros do seu agregado familiar.
6 - Reveja o funcionamento do Sistema de Atribuição de Produtos de Apoio, por forma a agilizar o acesso aos produtos de apoio por aqueles que...
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